Eczéma Québec is dedicated to partnering with patients, healthcare professionals and adolescent and adult experts living with atopic dermatitis to improve care in Quebec. We strive to provide more human, personalized and effective care for those affected by the disease. By utilizing evidence-informed care, we aim to improve health outcomes and enhance care trajectories through innovative partnerships. With the guidance of the CEPPP’s patient engagement framework, we involve patients through our patient committee to develop, evaluate and synthesize educational content and create patient-centered resources such as the EczemaQ app.[CSJM1] [CSJM2]

Vision

A world where eczema is understood, treated, and managed effectively.

Mission

To increase awareness and understanding of eczema in Quebec, advocate for the needs of those affected by the condition and improve access to resources and services. [CSJM3]

Values

Patient-centered care: We prioritize the lived experiences and needs of those affected by eczema.

Collaboration: We work with all stakeholders to bring about a better future for those affected by eczema.

Evidence-based practice: We rely on science, research, and reason to inform our understanding and treatment of eczema.

Transparency: We are honest, trustworthy, and open in all our actions and decisions.

Inclusivity: We strive to create a safe and welcoming environment for all those affected by eczema, regardless of race, gender, age, sexual orientation, religion, or any other characteristic.

Continuous improvement: We are committed to continuously learning and improving our knowledge, skills, and practices in the field of eczema.

Empowerment: We empower and support those affected by eczema to take control of their condition and lead fulfilling lives.

Respect: We treat all individuals with dignity, compassion, and respect.

Innovation: We embrace new ideas and technologies to improve the lives of those affected by eczema.

Community: We are committed [CSJM4] to building and strengthening the eczema community in Quebec.[CB[5] [CB[6]

Strengths and Uniqueness

Eczéma Québec is the only organization in Quebec dedicated solely to eczema awareness, education, and advocacy. Our strong connections to the eczema community and healthcare professionals [CSJM7] provide valuable insight and knowledge.

Areas of Improvement

Eczéma Québec is constantly looking for ways to improve and better serve our members and the eczema community. Some areas that we are currently focusing on for improvement include:

Resource building: We hope to continue to develop more resources for the eczema community and healthcare professionals.
Outreach and engagement: We aim to increase our outreach and engagement with members of the eczema community, particularly those who may be underrepresented or marginalized.
Digital presence: We are working to improve our digital presence and make our resources and information more accessible to our members through our website and social media channels.
Community building: We want to foster a stronger sense of community among our members and other stakeholders, by organizing ~~more~~ events and activities that bring people together.[CSJM8]
Evidence-based information: We are committed to providing evidence-based information and resources to our members and other stakeholders. We review and update our existing resources and develop new ones to ensure they are accurate and relevant [CSJM9] .
Partnership and collaboration: ~~We are looking to~~ [CSJM10] ~~strengthen our~~ partnerships and collaboration with healthcare professionals, researchers, and other organizations to improve eczema care and advocate for the rights and needs of individuals with eczema.
Advocacy: We are looking to increase our advocacy efforts on the provincial and national level, by identifying key issues and developing a clear plan of action.[CSJM11]
Evaluation and monitoring: We are working to improve our evaluation and monitoring systems in order to measure the impact of our activities, and track progress towards our goals.[CSJM12]
Continual learning: We are committed to continual learning by staying up to date with the latest research and trends in eczema management and treatment.

Board of Directors

Eczéma Québec’s Board of Directors is composed of dedicated individuals who are committed to improving the lives of those affected by eczema. The Board is responsible for the overall governance and strategic direction of the organization.

The Board is composed of a diverse group of individuals, including:

Board Chair: The Board Chair is responsible for leading the Board of Directors and ensuring that meetings are conducted in an orderly and efficient manner. They also represent the Board to the public and act as an ambassador for Eczéma Québec.[CB[13] [CB[14] [CB[15] [CSJM16] [CSJM17] [CSJM18]
Vice-Chair: The Vice-Chair supports the Board Chair in their duties and assumes the role of the Board Chair in their absence.
Secretary: The Secretary is responsible for maintaining accurate records of Board meetings and ensuring that all required documents are properly filed.[CB[19] [CB[20] [CB[21] [CSJM22] [CSJM23] [CSJM24]
Treasurer: The Treasurer is responsible for managing the organization’s finances, including budgeting and financial reporting.[CB[25] [CB[26]
Medical Board Director: The Medical Board Director is responsible for ensuring that the medical information disseminated by Eczéma Québec is accurate, evidence-based, and up to date.[CB[27] [CB[28] [CSJM29]
Legal Director: The Legal Director is responsible for providing legal advice and support to the organization. They responsible for reviewing and drafting legal documents, such as contracts, bylaws, and policies. Advising the Board of Directors on legal matters related to the organization’s operations and activities, representing the organization in legal matters, such as litigation or regulatory compliance. Keeping the Board of Directors informed of any legal developments that may impact the organization and ensuring that the organization is in compliance with all applicable laws and regulations.
Administrators: The administrators are responsible for representing the interests of the organization’s members and providing input on important decisions. They are also responsible for ensuring that the organization’s mission is being fulfilled.

All members of the Board of Directors are volunteers who are elected by the organization’s membership for a term of two years, with the possibility of re-election. The Board of Directors meets on a regular basis to discuss and make decisions on important issues facing the organization.

Medical board of advisors

Blurb for the website

Eczéma Québec’s Medical Advisor Board is composed of esteemed medical professionals who specialize in the field of dermatology, specifically in atopic dermatitis. These advisors are dedicated to providing the organization with the latest medical knowledge and expertise in the field of eczema. They review and provide guidance on the medical content of our programs and services, ensuring that the information provided to our community is accurate and up-to-date. They also serve as a liaison between the organization and the medical community, helping to raise awareness and understanding of eczema among healthcare professionals. The Medical Advisor Board meets regularly to discuss new research and developments in the field, and to provide input on the organization’s strategic direction. We are grateful for the dedication and expertise of our Medical Advisor Board, as they play a crucial role in helping us achieve our mission of improving the lives of those living with eczema.

If you are a medical professional with an interest in atopic dermatitis and are interested in joining our Medical Advisor Board, please contact us at the provided email address or phone number. We would be honored to have your expertise and guidance as we work towards our mission of improving the lives of those living with eczema.[CSJM30]

Eczéma Québec Medical Board Mandate

Purpose: To ensure that the medical information disseminated by Eczéma Québec is accurate, evidence-based, and up to date, the Medical Board will review the content prior to its release to the public.

Responsibilities:

Review all medical content, including brochures, articles, and educational materials, prior to their release by Eczéma Québec.
Ensure that the information is accurate, evidence-based, and consistent with current medical knowledge and guidelines.
Make recommendations for revisions or corrections as needed.
Approve all content for release to the public.
Monitor the dissemination of content to ensure compliance with the approved materials.
Provide regular reports to the Eczéma Québec leadership team regarding the Medical Board’s review and approval process.

Membership: The Medical Board will consist of at least three board-certified physicians with relevant expertise in the field of eczema and dermatology. The members will be appointed by the Eczéma Québec leadership team and will serve for a term of two years, with the possibility of reappointment.

Financials [CB[31] [CSJM32]

Blurb for the website
Eczéma Québec is committed to being transparent and accountable to our stakeholders. We believe that providing access to our financial information is an important part of this commitment. Our financial report is a comprehensive summary of our financial activities and performance for the year. It provides an overview of our revenues and expenses, as well as an analysis of our financial position and cash flow. We invite you to review this report and to contact us if you have any questions or comments.

Notice to the Reader

The consolidated financial statements of Eczéma Québec have been compiled by Charlie Bouchard, a member of the Eczéma Québec board, as of February 2nd, 2023.

This compilation was performed in accordance with Canadian accounting standards for not-for-profit organizations and includes the consolidated statement of financial position as at March 31, 2021 [CSJM33] , the consolidated statement of changes in net assets, consolidated statement of operations, and consolidated statement of cash flows for the year then ended, and notes to the financial statements, including a summary of significant accounting policies.

It is important to note that this compilation does not include an audit or any form of assurance on the consolidated financial statements. This compilation also does not cover any supplementary information included with the consolidated financial statements or any information other than the consolidated financial statements.[CSJM34]

Management is responsible for the completeness and accuracy of the information contained in the consolidated financial statements [CSJM35] . Charlie Bouchard, as a compiler, has fulfilled the necessary ethical requirements and has conducted the compilation in accordance with Canadian generally accepted accounting principles.

2020-2021

Balance forward	$0.00
Partner Contributions	$23,000.00

Professional fees	$5,581.27
Memberships and service subscriptions	$626.43
On-line Transaction Fees	$1.70
Materials and supplies	$384.55
Promotion	$777.22
Reimbursement	$0.00
Travel expenses	$0.00
Project expenses	$14,618.83

Balance	$1,010.00


2021-2022

Balance forward	$1,010.00
Partner Contributions	$152,100.00
Public donations	$450.00

Professional fees	$30,154.68
Memberships and service subscriptions	$2,710.80
On-line Transaction Fees	$32.20
Materials and supplies	$1,526.71
Promotion	$90.77
Reimbursement	$2,157.84
Travel expenses	$2,147.93
Project expenses	$83,419.89

Balance	$31,319.18


2022-2023

Balance forward	$31,319.18
Partner Contributions	$46,395.00
Public donations

Professional fees
Memberships and service subscriptions
On-line Transaction Fees
Materials and supplies
Promotion
Reimbursement
Travel expenses
Project expenses

Balance	$77,714.18

Bylaws

SOAR Framework:

Specific: Increase awareness and understanding of eczema among the general population and healthcare professionals in Quebec.
Objective: Reduce the impact of eczema on the lives of those affected by the condition.
Action: Develop and implement education and awareness campaigns, as well as advocacy efforts at the provincial and national levels.
Results: Increased understanding and awareness of eczema leading to better diagnosis, treatment, and management of the condition for those affected.

Eczéma Québec’s processes

Information Gathering:

Information Gathering Protocol for Eczéma Québec:

Identify the information needs: The organization should first identify the information needs of its members and other stakeholders, such as healthcare professionals and researchers.
Develop a plan: The organization should develop a plan for gathering the necessary information, including the methods to be used and the resources required.
Gather information: The organization should gather information from a variety of sources, such as academic journals, government reports, and other organizations.
Strategic monitoring: Regularly review and analyze relevant data on eczema, including prevalence, treatment options, and patient experiences.
RSS: Utilize RSS feeds to stay up-to-date on the latest research and developments in eczema.
Community surveys: Conduct regular surveys of the eczema community in Quebec to gather feedback and insights on their experiences and needs.

Assess the quality of the information: The organization should assess the quality of the gathered information, including factors such as relevance, accuracy, and credibility.
Share the information: The organization should share the gathered information with its members and other stakeholders through various channels, such as the organization’s website, social media, and newsletters.
Encourage feedback: The organization should encourage feedback from members and other stakeholders on the information provided and use it to improve the information gathering process in the future.
Regularly update the information: The organization should regularly update the information to ensure that it remains accurate and relevant.
Maintain a repository of information: The organization should maintain a repository of information that can be easily accessed by members and other stakeholders.
Train members: The organization should train its members to critically evaluate the information they find, and how to distinguish credible sources from unreliable sources.

Priority Setting:

Purpose: To prioritize initiatives and projects based on the data and insights gathered through the information gathering process, as well as input from the eczema community and healthcare professionals.

Priority Setting Protocol for Eczéma Québec:

Establish a priority setting committee: This committee should be made up of representatives from different stakeholders, including individuals with eczema, healthcare professionals, researchers, and the organization’s leadership team.
Identify key priorities: The committee should conduct a thorough review of current research, as well as gather input from members of the eczema community, to identify the key priorities for the organization.
Prioritize priorities: Using a consensus-based approach, the committee should rank the identified priorities in order of importance, taking into account factors such as impact, feasibility, and urgency.
Develop a plan of action: Based on the prioritized list of priorities, the committee should develop a plan of action that outlines specific goals, objectives, and strategies for addressing each priority.
Communicate and involve the community: The committee should share the prioritized list of priorities and the plan of action with the eczema community and encourage members to provide feedback and get involved in the implementation of the plan.
Regularly review and adjust: The committee should regularly review progress on the plan of action and make adjustments as needed based on new information or feedback from the community.
Report progress to members: The committee should report progress on the plan of action to the members regularly and make it available on the organization’s website.

Validation of Content:

Purpose: Ensure that all education and awareness materials are scientifically accurate and reviewed by healthcare professionals before dissemination.

Content Validation Protocol for Eczéma Québec:

Identify the target audience: The organization should first identify the target audience for the content, including the specific demographic and their level of understanding of eczema.
Gather content: The organization should gather existing content that is related to eczema and the target audience.
Review and evaluate content: A team of experts, including healthcare professionals, researchers and patients, should review and evaluate the gathered content for accuracy, relevance, and readability. The team should also look for any biases, gaps, or outdated information.
Revise and update content: Based on the evaluation, the team should revise and update the content as needed to ensure that it is accurate, relevant, and easy to understand for the target audience.
Test the content: The team should test the content with a sample of the target audience to gather feedback on the content’s effectiveness in terms of readability, understanding, and relevance.
Revise and finalize the content: Based on the feedback, the team should make any necessary revisions to the content and finalize it.
Disseminate the content: The organization should disseminate the finalized content through various channels, such as the organization’s website, social media, and patient education materials.
Monitor and update the content: The organization should monitor the content and update it as needed to ensure that it remains accurate and relevant.
Encourage feedback: The organization should encourage feedback from the target audience and use it to improve the content in the future.

Dissemination of Content:

Purpose: To develop a comprehensive dissemination plan to reach a broad audience, including healthcare professionals, the general public, and those affected by eczema. Eczéma Québec utilizes a variety of channels, including social media, print materials, and events.

Dissemination Strategy for Eczéma Québec’s Online Content:

Define target audience: Clearly define the target audience for the content, including adolescent and adult Canadians suffering from Atopic Dermatitis, their caregivers, and their care team.
Develop a content plan: Develop a content plan that aligns with the needs and interests of the target audience.
Use multiple channels: Utilize multiple channels for disseminating the content, such as the organization’s website, social media platforms (Facebook, Instagram, Twitter, etc.), and email newsletters.
Optimize for search engines: Optimize the content for search engines to increase its visibility and reach among the target audience.
Leverage community groups: Leverage community groups, such as support groups and online forums, to share the content and engage with the target audience.
Collaborate with healthcare professionals: Collaborate with healthcare professionals, such as dermatologists and allergists, to share the content with their patients and expand the reach of the content to the target audience.
Use visually appealing content: Use visually appealing content such as infographics, videos, and images to make the content more engaging and shareable.
Encourage sharing and engagement: Encourage sharing and engagement with the content by including calls-to-action and providing incentives for engagement.
Track and measure success: Track and measure the success of the dissemination strategy by using analytics tools and gathering feedback from the target audience.
Continuously improve: Continuously improve the dissemination strategy by incorporating feedback and learning from the analytics data.

Provincial and National Advocacy:

Purpose: To develop and maintain relationships with key stakeholders at the provincial and national levels, including government officials and healthcare organizations, to advocate for improved access to eczema resources and services.

Advocacy Protocol for Eczéma Québec:

Identify key issues: The organization should first identify the key issues facing individuals with eczema, such as access to treatment and support, and the need for education and awareness about eczema.
Develop a plan of action: Based on the identified key issues, the organization should develop a plan of action that outlines specific goals, objectives, and strategies for advocacy.
Build relationships: The organization should build relationships with key stakeholders, such as policymakers, healthcare professionals, and other advocacy groups, to help advance its advocacy efforts.
Raise awareness: The organization should raise awareness about eczema and the key issues facing individuals with eczema through various channels, such as social media, press releases, and events.
Gather evidence: The organization should gather evidence to support its advocacy efforts, such as research and data on the impact of eczema on individuals and society.
Mobilize the community: The organization should mobilize its members and the eczema community to take action and support its advocacy efforts.
Collaborate with other organizations: The organization should collaborate with other organizations, both at a provincial and national level, to amplify the impact of their advocacy efforts
Monitor and track progress: The organization should monitor and track progress on its advocacy efforts and make adjustments as needed.
Report progress to members: The organization should report progress on its advocacy efforts to its members and make it available on the organization’s website.
Continuously evaluate: Continuously evaluate the advocacy efforts and adapt the plan of action as needed in response to changes in the environment, feedback, and new information.

External Opportunities:

Eczéma Québec has a number of external opportunities for collaboration and engagement that can help the organization to achieve its goals and better serve the eczema community. Some examples include:

Healthcare professionals: Collaborating with healthcare professionals, such as dermatologists and allergists, can provide valuable insights and expertise on eczema management and treatment, as well as help to expand the reach of the organization’s resources and information to patients.
Researchers: Collaborating with researchers can provide access to the latest research on eczema and help to inform the organization’s advocacy and awareness efforts.
Other advocacy organizations: Collaborating with other advocacy organizations can help to amplify the impact of the organization’s advocacy efforts and provide support and resources to members of the eczema community.
Government agencies: Collaborating with government agencies can help to raise awareness of eczema and advocate for policies and programs that support individuals with eczema.
Industry partners: Collaborating with industry partners, such as pharmaceutical companies and medical device manufacturers, can provide access to new and emerging treatments for eczema and help to improve the lives of individuals with eczema.

To engage with these external collaborators, Eczéma Québec can develop a plan that includes the following steps:

Identify potential collaborators: Identify potential collaborators that align with the organization’s goals and values.
Build relationships: Build relationships with potential collaborators by attending relevant conferences, networking events, and reaching out to them through email or phone.
Develop a proposal: Develop a proposal that outlines the potential benefits of collaboration, and how the organization and the collaborator will work together.
Communicate regularly: Communicate regularly with external collaborators to ensure that the collaboration is progressing as planned and to address any issues that may arise.
Evaluate the collaboration: Evaluate the collaboration regularly to measure its impact and identify areas for improvement.
Foster a culture of collaboration: Foster a culture of collaboration within the organization to encourage more opportunities for external collaboration.

Patient Engagement

Eczéma Québec’s objective is to engage with our patient community of advisors on a monthly basis in order to gather valuable feedback and input on our programs and services. By regularly communicating and collaborating with our patient advisors, we aim to improve the overall patient experience and ensure that our organization is meeting the needs of those living with eczema.

Eczéma Québec can engage with its community in several ways:

Surveys and feedback forms: Conducting regular surveys and feedback forms can help Eczéma Québec gather valuable insights and suggestions from the community on how to improve programs and services.
Social Media: Utilizing social media platforms such as Facebook, Twitter and Instagram to engage with the community by sharing relevant content, responding to comments and messages, and hosting live Q&A sessions.
Patient Committee: Forming a patient committee made up of individuals living with eczema to provide input and feedback on the organization’s programs and services.
Community events: Hosting events such as support groups, educational workshops, and health fairs to provide information and resources to the community while also creating opportunities for face-to-face engagement.
Newsletters and e-mails: Sending regular newsletters and e-mails to the community to keep them informed about the organization’s activities and events and also to gather feedback on the community’s needs
Collaborating with other organizations: Partnering with other organizations that serve the eczema community to collaborate on events, programs and to share resources, in order to better serve the community.

Patient Engagement Calendar

Month	Activity
January	Annual PAC membership renewal email Newsletter bulletin #1Newsletter bulletin #2
February	[CB[36] Monthly Newsletter bulletin #3Monthly Newsletter bulletin #4
March	Host a patient committee meeting to discuss the results of the patient satisfaction survey (date)Participation in Global Skin’s Organizational Sustainability: Why Youth Engagement Matters workshop (2023-03-09, 10:00 AM)Newsletter bulletin #5Newsletter bulletin #6
April	Newsletter bulletin #7Newsletter bulletin #8
Mai	Host a patient committee meeting to discuss resources for the website (date)Newsletter bulletin #9Newsletter bulletin #10
June	Patient participation in GlobalSkin Conference ELEVATE 2023 with Eczéma Québec patient ambassadors (2023-06-01 – 2023-06-04)Newsletter bulletin #11Newsletter bulletin #12
July	Monthly Newsletter bulletin #13Monthly Newsletter bulletin #14
August	Host a patient committee meeting to discuss resources for the newsletter (date)Newsletter bulletin #15Newsletter bulletin #16
September	Newsletter bulletin #17Newsletter bulletin #18
October	Newsletter bulletin #19Newsletter bulletin #20
November	Host a patient committee meeting to discuss structure of the PAC for 2024 (date)Newsletter bulletin #21Newsletter bulletin #22
December	Launch a patient satisfaction survey to gather feedback on the organization’s programs and servicesNewsletter bulletin #23Newsletter bulletin #24

Process for hosting a patient advisory committee (PAC) meeting:

Define the purpose and objectives of the PAC meeting: Determine the key topics that need to be discussed and what you hope to achieve from the meeting.
Identify the participants: Choose members for the PAC who represent a diverse range of perspectives and experiences.
Schedule the meeting: Select a date and time that is convenient for all participants and reserve a suitable location.
Prepare an agenda: Create an agenda that includes an introduction, updates on the project, discussion topics, and any other relevant information.
Send out invitations: Notify all PAC members of the meeting details, including the date, time, location, and agenda.
Prepare materials: Compile all relevant materials, such as presentations, handouts, or reports, that will be used during the meeting.
Set up audio-visual equipment: Ensure that you have the necessary audio-visual equipment, such as a projector and microphone, for the meeting.
Plan for food and drinks: Arrange for refreshments, such as coffee and snacks, to be available for participants during the meeting.
Welcome participants: Greet participants as they arrive and ensure that they are seated comfortably.
Start the meeting: Begin the meeting by introducing yourself and welcoming participants. Review the agenda and explain the purpose and objectives of the meeting.
Lead discussions: Encourage participants to share their thoughts, experiences, and feedback during the discussions. Ensure that everyone has an opportunity to contribute.
Summarize key takeaways: At the end of the meeting, summarize the key takeaways and next steps.
Follow up: After the meeting, send out meeting minutes and any relevant materials to all participants. Follow up with participants to ensure that their concerns and suggestions have been addressed.

By following this plan, we can ensure that your PAC meeting is well-organized, productive, and meets the needs of all participants. The goal is to ensure that the perspectives of patients are heard and incorporated into the project, leading to better outcomes and more meaningful results.

Eczéma Québec Community Satisfaction Survey

Website post

English

As a patient-focused organization, our goal is to provide the best care and support for those living with eczema. To better understand your needs and satisfaction within our community, we invite you to participate in our community satisfaction survey.

Your feedback will help us identify areas for improvement and ensure that we are meeting your needs as a community.

We would be grateful if you could take a few minutes to answer the survey. Please note that the responses collected will be treated confidentially and anonymously.

By sharing your thoughts and experiences, you will be contributing to the future of our community and making a difference in the lives of those affected by eczema.

Thank you for your continued support of Eczéma Québec.

French

En tant qu’organisation axée sur les patient∙e∙s, notre objectif est de fournir le meilleur soin et soutien aux personnes qui vivent avec l’eczéma. Pour mieux comprendre vos besoins et votre satisfaction au sein de notre communauté, nous vous invitons à participer à notre sondage.

Vos commentaires nous aideront à améliorer nos services et à nous assurer que nous répondons à vos besoins en tant que communauté.

Nous serions reconnaissants si vous pouviez répondre à ce sondage qui ne prendra que quelques minutes de votre temps. Notez bien que les réponses recueillies seront traitées de manière confidentielle et anonyme.

En partageant vos pensées et expériences, vous contribuerez à l’avenir de notre communauté et ferez une différence dans la vie des personnes touchées par l’eczéma.

Merci pour votre soutien continu à Eczéma Québec.

English Survey

URL: https://forms.gle/sErn9ZNbbSXnyHH98

SECTION 1 – INTRODUCTION Title: Eczéma Québec’s community satisfaction survey Description: As an organization focused on patients, our goal is to provide the best care and support for those living with eczema. To gain a better understanding of your needs and satisfaction with our community, we invite you to take part in our community satisfaction survey. Your insights are invaluable and will help us identify areas for improvement and make sure we are meeting your needs as a community. The survey will only take a few minutes of your time, and your responses will be kept completely confidential. By voicing your thoughts and experiences, you will be contributing to the future of our community and making a difference in the lives of those affected by eczema. We would be thankful if you could take a few minutes to answer our survey. Thank you for your ongoing support of Eczéma Québec. SECTION 2 – OVERALL SATISFACTION Description: We are seeking to determine if we are fulfilling the expectations of our community. Question 1: On a scale of 1 (Hate it) to 5 (Love it), how would you rate your overall satisfaction with the programs and services offered by Eczéma Québec? SECTION 3 – PROGRAMS & SERVICES Description: We aim to gauge the level of satisfaction among our community regarding the services offered by Eczéma Québec. Question 2: On a scale of 1 (Hate it) to 5 (Love it), how would you rate your overall satisfaction with Eczéma Québec’s website? Question 3: On a scale of 1 (Hate it) to 5 (Love it), how would you rate your overall satisfaction with Eczéma Québec’s newsletter bulletin? Description: Ignore this question if you are not a recipient of our newsletter. Question 4: On a scale of 1 (Hate it) to 5 (Love it), how would you rate your overall satisfaction with the content shared on Eczéma Québec’s social media channels? Description: Ignore this question if you do not use our social media channels SECTION 4 – RELEVANCE Description: We want to understand to what extent did you find the programs and services offered by Eczéma Québec relevant to your needs? Question 5: On a scale of 1 (Not relevant) to 5 (Very relevant), how would you rate the relevance of the information shared by Eczéma Québec? SECTION 5 – ACCESSIBILITY Description: We want to assess the accessibility of resources, services, and platforms offered by Eczéma Québec. Question 6: On a scale of 1 (Not accessible) to 5 (Very accessible), how would you rate the accessibility of the resources shared by Eczéma Québec? Question 7: On a scale of 1 (Very hard) to 5 (Very easy), how easy was it for you to find information on our website? SECTION 6 – ADDITIONAL FEEDBACK Description: We would like to thank you for taking the time to participate in our survey. Your feedback is extremely valuable to us as it will help us understand your experiences and needs as a member of our community. In this additional feedback section, we would like to gather any further thoughts or comments you may have about your experiences with our programs and services. This will allow us to make necessary improvements and better cater to your needs as a community member. Question 8: Is there anything that you particularly liked or disliked about your experience with Eczéma Québec? Question 9: Do you have any other comments or suggestions that you would like to share with us? SECTION 7 – Demographics Description: Please note that providing demographic information is optional and will not impact your participation in our survey. We collect this information to better understand the needs and preferences of our community members, and to tailor our programs and services to better meet those needs. Your responses to this survey are completely confidential and will only be used for internal analysis and improvement purposes. Question 10: In which age bracket would you categorize yourself? Under 12 years old12-14 years old18-24 years old25-34 years old35-44 years old45-54 years old55-64 years old65 years and olderPrefer not to say. Question 11: What is your gender identity? ManWomanNon-binaryOtherPrefer not to say. Question 12: What is your experience with eczema? I am a patient living with eczema.I am a caregiver for someone living with eczema.I am interested in learning about eczema.I am a healthcare provider.Other

French survey

URL: https://forms.gle/8MmQ2G1JR7vXSzB59

SECTION 1 – INTRODUCTION Title: Questionnaire d’évaluation de la satisfaction des membres de la communauté d’Eczéma Québec Description: En tant qu’organisation axée sur les patient∙e∙s, notre objectif est de fournir le meilleur soin et soutien aux personnes qui vivent avec l’eczéma. Pour mieux comprendre vos besoins et votre satisfaction au sein de notre communauté, nous vous invitons à participer à notre sondage. Vos commentaires nous aideront à améliorer nos services et à nous assurer que nous répondons à vos besoins en tant que communauté. Nous serions reconnaissants si vous pouviez répondre à ce sondage qui ne prendra que quelques minutes de votre temps. Notez bien que les réponses recueillies seront traitées de manière confidentielle et anonyme. En partageant vos pensées et expériences, vous contribuerez à l’avenir de notre communauté et ferez une différence dans la vie des personnes touchées par l’eczéma. Merci pour votre soutien continu à Eczéma Québec. SECTION 2 – SATISFACTION GÉNÉRALE Description: Nous cherchons à déterminer si nous répondons aux attentes de notre communauté. Question 1: Sur une échelle de 1 (Insatisfait∙e) à 5 (Satisfait․e), comment évalueriez-vous votre satisfaction globale à l’égard des programmes et services offerts par Eczéma Québec? SECTION 3 – PROGRAMME ET SERVICES Description: Nous visons à mesurer le niveau de satisfaction de notre communauté à l’égard des services offerts par Eczéma Québec. Question 2: Sur une échelle de 1 (Insatisfait∙e) à 5 (Satisfait․e), comment évalueriez-vous votre satisfaction globale à l’égard du site Web d’Eczéma Québec? Question 3: Sur une échelle de 1 (Insatisfait∙e) à 5 (Satisfait․e), comment évalueriez-vous votre satisfaction globale à l’égard du bulletin d’Eczéma Québec? Description: Ignorez cette question si vous n’êtes pas abonné à notre newsletter. Question 4: Sur une échelle de 1 (Insatisfait∙e) à 5 (Satisfait․e), comment évaluez-vous votre satisfaction globale à l’égard du contenu partagé sur les médias sociaux d’Eczéma Québec? Description: Ignorez cette question si vous ne consultez pas nos médias sociaux SECTION 4 – PERTINENCE Description: Nous voulons comprendre dans quelle mesure avez-vous trouvé les programmes et services offerts par Eczéma Québec pertinents à vos besoins? Question 5: Sur une échelle de 1 (Impertinent) à 5 (Très pertinent), comment évalueriez-vous la pertinence de l’information partagée par Eczéma Québec? SECTION 5 – ACCESSIBILITÉ Description: Nous voulons évaluer l’accessibilité des ressources, des services et des plateformes offerts par Eczéma Québec. Question 6: Sur une échelle de 1 (Inaccessible) à 5 (Très accessible), comment évaluez-vous l’accessibilité des ressources partagées par Eczéma Québec? Question 7: Sur une échelle de 1 (Très difficile) à 5 (Très facile), a-t-il été facile pour vous de trouver de l’information sur notre site Web? SECTION 6 – RÉTROACTIVE SUPPLÉMENTAIRE Description: Nous tenons à vous remercier d’avoir pris le temps de participer à notre sondage. Vos commentaires sont extrêmement précieux pour nous, car ils nous aideront à comprendre vos expériences et vos besoins en tant que membre de notre communauté. Dans cette section de rétroaction supplémentaire, nous aimerions recueillir d’autres réflexions ou commentaires que vous pourriez avoir sur vos expériences avec nos programmes et services. Cela nous permettra d’apporter les améliorations nécessaires et de mieux répondre à vos besoins en tant que membre de la communauté. Question 8: Y a-t-il quelque chose qui vous a particulièrement plu ou déplu dans votre expérience avec les services Eczéma Québec? Question 9: Avez-vous d’autres commentaires ou suggestions que vous souhaitez partager avec nous? SECTION 7 – Démographie Description: Veuillez noter cette section est facultative et n’aura aucune incidence sur votre participation au sondage. Nous recueillons ces renseignements afin de mieux comprendre les besoins et les préférences des membres de notre communauté et d’adapter nos programmes et services pour mieux répondre à ces besoins. Vos réponses sont entièrement confidentielles et ne seront utilisées qu’à des fins d’analyse interne et d’amélioration. Question 10: Dans quelle tranche d’âge vous classeriez-vous? Moins de 12 ans 12-14 ans18-24 ans25-34 ans35-44 ans45-54 ans55-64 ans65 ans et plusJe préfère ne pas répondre Question 11: Quelle est votre identité de genre? HommeFemmeNon binaireAutreJe préfère ne pas répondre Question 12: Quelle est votre expérience avec l’eczéma? Je suis un∙e patient∙e atteinte d’eczémaJe m’occupe d’une personne atteinte d’eczémaJe suis intéressé∙e à en apprendre davantage sur l’eczémaJe suis un∙e proffessionel∙le de la santéJe préfère ne pas répondreAutre

Contact us [CB[37]

Website footer disclaimer

English

Eczéma Québec makes every effort to ensure that the information shared through its website is accurate and up-to-date. In conformity with our non-responsibility disclaimer, we cannot guarantee the accuracy, completeness, or usefulness of the information provided, and we accept no responsibility or liability for any errors or omissions. The information presented is intended for general informational purposes and is not a substitute for professional advice. Please consult a qualified healthcare professional for specific advice regarding your individual situation.

French

Eczéma Québec s’efforce de veiller à ce que les informations présentées sur son site web soient exactes et à jour. En conformité avec notre avis de non-responsabilité, nous ne pouvons garantir l’exactitude, l’exhaustivité ou l’utilité des informations fournies, et nous n’acceptons aucune responsabilité ou responsabilité pour toutes erreurs ou omissions. Les informations présentées sont destinées à des fins d’information générale seulement et ne doivent pas être considérées comme un substitut à un conseil professionnel. Veuillez consulter un professionnel de la santé qualifié pour des conseils spécifiques concernant votre situation personnelle.

Non-Responsibility disclaimer

English

URL: https://eczemaquebec.com/newsletter/non-responsibility-disclaimer/

Non-Responsibility disclaimer

LIMITATION OF LIABILITY
Eczéma Québec makes no representation or warranty as to the reliability, timeliness, accuracy, or completeness of any information contained in the newsletters. The information is provided “as is” without warranty of any kind. Eczéma Québec shall not be liable for any damages, direct or indirect, arising from the use of these newsletters, including claims, actions, or proceedings.

LIABILITY WITH REGARD TO LINKS
The newsletters contain links to websites managed by third parties. These links are provided for the convenience of users only. Eczéma Québec does not endorse or ensure the accuracy or completeness of the content of these links or the opinions expressed on these external websites and assumes no responsibility in this regard.

INTELLECTUAL PROPERTY
Eczéma Québec takes reasonable measures to respect the intellectual property rights related to the content of the newsletters. The content of the newsletters, including their presentation, is protected by the Copyright Act (R.S.C. (1985), ch. C-42). Eczéma Québec does not guarantee or declare that the content of the newsletters does not infringe on the rights of any other person or entity. The content of the newsletters is intended for personal and informational use only. Any commercial use of the newsletters is strictly prohibited. Downloads, reproductions for backup purposes, and paper printouts are allowed only for private, non-commercial use. Any downloading, reproduction, publishing on another website, or broadcasting on the Internet for commercial or public purposes requires prior authorization in accordance with intellectual property laws in force.
To obtain authorization for reproduction for public or commercial purposes, please contact the EczémaQuébec team at the following address: eczemaquebec@gmail.com.

French

URL: https://eczemaquebec.com/avis-non-responsabilite/

Avis de non-responsabilité

LIMITATION DE RESPONSABILITÉ

Eczéma Québec ne garantit pas la fiabilité, l’actualité, l’exactitude ou l’exhaustivité de toutes les sources d’information présentes dans ses infolettres. Les informations sont fournies sans garantie de quelque nature que ce soit. Eczéma Québec ne peut être tenu responsable de tout dommage, direct ou indirect, découlant de l’utilisation de ces infolettres, y compris les réclamations, les actions ou les poursuites.

RESPONSABILITÉ RELATIVES AUX LIENS

Les Infolettres incluent des liens vers des sites web gérés par des tiers. Ces liens sont fournis pour la commodité des utilisateurs uniquement. Eczéma Québec ne cautionne ni n’assure la précision ou l’intégralité du contenu de ces liens ni les opinions exprimées sur ces sites web externes et n’assume aucune responsabilité à leur égard.

PROPRIÉTÉ INTELLECTUELLE

Eczéma Québec s’efforce de respecter les droits de propriété intellectuelle liés au contenu des infolettres. Le contenu des infolettres, y compris leur présentation, est protégé par la Loi sur le droit d’auteur (L.R.C. (1985), ch. C-42). EczémaQuébec ne garantit pas et ne déclare pas que le contenu des infolettres ne viole aucun droit d’une autre personne ou entité. Le contenu des infolettres est uniquement destiné à un usage personnel et informatif. Toute utilisation commerciale des infolettres est strictement interdite. Les téléchargements, les reproductions à des fins de sauvegarde et les tirages sur papier sont autorisés uniquement pour un usage privé et non commercial. Tout téléchargement, reproduction, publication sur un autre site ou diffusion sur Internet à des fins commerciales ou publiques requiert une autorisation préalable conformément aux lois sur la propriété intellectuelle en vigueur.

Pour obtenir une autorisation de reproduction à des fins publiques ou commerciales, veuillez contacter l’équipe d’EczémaQuébec à l’adresse suivante : eczemaquebec@gmail.com.

Sign up to our newsletter

English

Keep yourself in the know and be a part of our community by subscribing to Eczéma Québec’s newsletter! Our newsletter is a great way to stay current on the latest eczema-related news, research, and happenings. As a subscriber, you will receive updates on our organization’s programs and services, new resources and information on eczema management and treatment, and opportunities to get involved in advocacy and awareness efforts. You’ll also be the first to know about any upcoming events and webinars organized by Eczéma Québec. By joining our newsletter, you’ll be joining a community of individuals with eczema, their caregivers, and healthcare professionals who are all united in their dedication to support and empower one another. Sign up for our newsletter now and be a part of the Eczéma Québec community.

French

Rejoignez la communauté d’Eczéma Québec en vous abonnant à notre infolettre. Restez informé sur les dernières actualités, recherches et événements liés à l’eczéma grâce à notre bulletin d’information. En tant qu’abonné, vous recevrez des mises à jour sur les programmes et services de notre organisation, de nouvelles ressources sur la gestion et le traitement de l’eczéma, ainsi que des opportunités de participer à nos efforts de sensibilisation et de défense des intérêts des patient∙e∙s. Soyez parmi les premier∙ère∙s informé∙e∙s des événements et webinaires organisés par Eczéma Québec. Rejoignez notre communauté patient∙e∙s, de proches aidants et de professionnel∙le∙s de la santé en vous inscrivant dès maintenant.

Newsletter sign up form

URL: https://eczemaquebec.com/newsletter/

Eczéma Québec Newsletter Privacy Policy

English

Eczéma Québec Newsletter Privacy Policy

Eczéma Québec is committed to protecting the privacy of our subscribers. The following privacy policy outlines the types of personal information we collect, how it is used, and how we protect it.

Information Collection and Use
We collect personal information from our subscribers when they sign up for the Eczema Québec’s newsletter. This information includes name and email address.
We use this information to send our subscribers the bi-monthly bulletins.
We may also share engagement data with our financial partners for improvement and reporting purposes
Data Protection
We take the security of our subscribers’ personal information very seriously. We use appropriate technical and organizational measures to protect personal information against unauthorized or unlawful processing and against accidental loss, destruction, damage, alteration, and unauthorized disclosure or access.
We will not share, sell, or rent personal information to any third party, except as provided in this policy or as required by law.
Access to Personal Information
Subscribers have the right to request access to their personal information and to request that it be corrected or deleted. They can do so by contacting us at the email or address provided on the website.
We will respond to such requests within a reasonable time frame.
Changes to this Policy
We reserve the right to make changes to this privacy policy at any time. Any changes will be posted on this page and will take effect immediately.

By subscribing to the Eczema Québec’s newsletter, you consent to the collection, use, and protection of your personal information as described in this policy. If you have any questions or concerns about our privacy policy, please contact us at the email or address provided on the website.

French

Politique de confidentialité du bulletin Eczéma Québec

Eczéma Québec s’engage à protéger la vie privée de ses abonnés. La politique de confidentialité suivante décrit les types d’informations personnelles que nous collectons, comment elles sont utilisées et comment nous les protégeons.

Collecte et utilisation des informations
Nous recueillons les renseignements personnels de nos abonnés lors de leur inscription à l’infolettre d’Eczéma Québec. Ces informations incluent le nom et l’adresse e-mail.
Nous utilisons ces informations pour envoyer à nos abonnés les bulletins bimensuels.
Nous pouvons également partager des données d’engagement avec nos partenaires financiers à des fins d’amélioration et de reporting
Protection des données
Nous prenons très au sérieux la sécurité des informations personnelles de nos abonnés. Nous utilisons des mesures techniques et organisationnelles appropriées pour protéger les informations personnelles contre le traitement non autorisé ou illégal et contre la perte accidentelle, la destruction, les dommages, l’altération et la divulgation ou l’accès non autorisé.
Nous ne partagerons, ne vendrons ni ne louerons d’informations personnelles à des tiers, sauf dans les cas prévus dans la présente politique ou conformément à la loi.
Accès aux informations personnelles
Les abonnés ont le droit de demander l’accès à leurs informations personnelles et de demander qu’elles soient corrigées ou supprimées. Ils peuvent le faire en nous contactant à l’adresse e-mail ou à l’adresse indiquée sur le site Web.
Nous répondrons à ces demandes dans un délai raisonnable.
Modifications de cette politique
Nous nous réservons le droit d’apporter des modifications à cette politique de confidentialité à tout moment. Toute modification sera publiée sur cette page et prendra effet immédiatement.

En vous abonnant à l’infolettre d’Eczéma Québec, vous consentez à la collecte, à l’utilisation et à la protection de vos renseignements personnels tel que décrit dans cette politique. Si vous avez des questions ou des préoccupations concernant notre politique de confidentialité, veuillez nous contacter à l’adresse e-mail ou à l’adresse indiquée sur le site Web.

Eczéma Québec newsletter Terms and Conditions

English

Eczéma Québec newsletter Terms and Conditions

Introduction
The Eczéma Québec Newsletter is a bi-monthly bulletin created by members of our organization. By subscribing to the Eczema Québec newsletter, you agree to be bound by these terms and conditions.
Eczéma Québec reserves the right to change these terms and conditions at any time, and your continued use of the Eczema Update following any changes indicates your acceptance of the new terms.
Content
The Eczema Québec newsletter provides subscribers with information about the latest research, treatment options, and tips for managing atopic dermatitis.
The content of the Eczema Update is intended for general informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Eczéma Québec does not guarantee completeness, or usefulness of any information provided in the Eczema Québec newsletter.
Subscription
To subscribe to the Eczéma Québec newsletter, you must provide a valid email address and complete the sign-up form.
You may unsubscribe from the Eczema Québec newsletter at any time by clicking the unsubscribe link at the bottom of the newsletter or by contacting Eczéma Québec.
Privacy
Eczéma Québec respects your privacy and is committed to protecting the personal information you provide when subscribing to our newsletter. Our privacy policy is available on our website and will be shared with you upon subscribing.
Limitation of Liability
Eczéma Québec shall not be liable for any damages resulting from the use of the Eczéma Québec Newsletter or the reliance on the information provided in the newsletter.

By subscribing to Eczéma Québec’s newsletter, you acknowledge that you have read, understand, and agree to be bound by these terms and conditions. If you do not agree to these terms and conditions, you should not subscribe to the Eczema Québec newsletter.

French

Conditions d’utilisation du bulletin Eczéma Québec

Introduction
Le Bulletin Eczéma Québec est un bulletin bimestriel créé par des membres de notre organisation. En vous abonnant à l’infolettre d’Eczéma Québec, vous acceptez d’être lié par ces termes et conditions.
Eczéma Québec se réserve le droit de modifier ces termes et conditions à tout moment, et votre utilisation continue de la Mise à jour Eczéma suite à tout changement indique votre acceptation des nouveaux termes.
Contenu
Le bulletin Eczéma Québec fournit aux abonnés des informations sur les dernières recherches, les options de traitement et des conseils pour gérer la dermatite atopique.
Le contenu de la mise à jour sur l’eczéma est destiné à des fins d’information générale uniquement et n’est pas destiné à remplacer un avis médical professionnel, un diagnostic ou un traitement.
Eczéma Québec ne garantit pas l’exhaustivité ou l’utilité des informations fournies dans le bulletin Eczéma Québec.
Abonnement
Pour vous abonner à l’infolettre d’Eczéma Québec, vous devez fournir une adresse de courriel valide et remplir le formulaire d’inscription.
Vous pouvez vous désinscrire de l’infolettre d’Eczéma Québec en tout temps en cliquant sur le lien de désinscription au bas de l’infolettre ou en communiquant avec Eczéma Québec.
Confidentialité
Eczéma Québec respecte votre vie privée et s’engage à protéger les renseignements personnels que vous fournissez lors de votre inscription à notre infolettre. Notre politique de confidentialité est disponible sur notre site Web et vous sera communiquée lors de votre inscription.
Limitation de responsabilité
Eczéma Québec n’est pas responsable des dommages résultant de l’utilisation de l’infolettre Eczéma Québec ou de la confiance accordée aux informations fournies dans l’infolettre.

En vous inscrivant à l’infolettre d’Eczéma Québec, vous reconnaissez avoir lu, compris et accepté d’être lié par ces termes et conditions. Si vous n’acceptez pas ces termes et conditions, vous ne devez pas vous abonner à l’infolettre d’Eczéma Québec.

Eczéma Québec Newsletter – Copyright Disclaimer

English

Copyright © 2023 Eczéma Québec. All rights reserved. The content of this newsletter, including all text, images, and other materials, is protected by copyright and may not be reproduced, republished, or distributed without prior written permission from Eczéma Québec. The information contained in this newsletter is intended for the exclusive use of our subscribers and may not be used for commercial purposes without the express written consent of Eczéma Québec.

French

Copyright © 2023 Eczéma Québec. Tous droits réservés. Le contenu de cette newsletter, y compris tout le texte, les images et autres matériaux, est protégé par le droit d’auteur et ne peut être reproduit, republié ou diffusé sans autorisation écrite préalable d’Eczéma Québec. Les informations contenues dans cette newsletter sont destinées à un usage exclusif de nos abonnés et ne peuvent être utilisées à des fins commerciales sans l’accord écrit d’Eczéma Québec.

Eczéma Québec Newsletter – Non-responsibility policy

English

Eczéma Québec makes every effort to ensure that the information contained in this newsletter is accurate and up-to-date. In conformity with our non-responsibility policy, we cannot guarantee the accuracy, completeness, or usefulness of the information provided, and we accept no responsibility or liability for any errors or omissions. The information in this newsletter is intended for general informational purposes only and is not intended as a substitute for professional advice. Please consult a qualified healthcare professional for specific advice regarding your individual situation.

French

Eczéma Québec s’efforce de veiller à ce que les informations contenues dans cette newsletter soient exactes et à jour. En conformité avec notre politique de non-responsabilité, nous ne pouvons garantir l’exactitude, l’exhaustivité ou l’utilité des informations fournies, et nous n’acceptons aucune responsabilité ou responsabilité pour toutes erreurs ou omissions. Les informations contenues dans cette newsletter sont destinées à des fins d’information générale seulement et ne doivent pas être considérées comme un substitut à un conseil professionnel. Veuillez consulter un professionnel de la santé qualifié pour des conseils spécifiques concernant votre situation personnelle.

Sign up to our Eczema Update Feed

Eczéma Québec is dedicated to providing our community with the most up-to-date and comprehensive information on atopic dermatitis. Our team conducts extensive research on a wide range of topics related to eczema, including the impact on mental health, new therapies, clinical management, and special populations. To ensure that we are providing the most current and relevant information, we use a variety of sources, such as PubMed, Mbase, and Psycinfo to survey the most recent scientific literature. By signing up for our Eczema Update Feed, you will receive a monthly summary of our research, including new findings, treatment options, and tips for managing eczema. Stay informed and stay on top of the latest developments in eczema care and management

subscribe now!

Eczema Update Feed Sign-up form

Personal Information NameEmail address Research interests Topics of Interest (list from existing topics)Topics of interest (text box) Consent I agree to receive communication from Eczéma QuébecI agree to the terms and conditions of Eczéma Québec

Eczéma Update Feed Privacy Policy

English

Eczéma Update Feed Privacy Policy

Eczéma Québec is committed to protecting the privacy of our subscribers. The following privacy policy outlines the types of personal information we collect, how it is used, and how we protect it.

Information Collection and Use

We collect personal information from our subscribers when they sign up for the Eczema Update. This information includes name, email address and topics of interest.
We use this information to send our subscribers the monthly Eczema Update and to tailor the content of the update to the specific interests of our subscribers.
We may also share topics of interest with our partners for the purpose of improving our services and providing relevant information to our subscribers.

Data Protection

We take the security of our subscribers’ personal information very seriously. We use appropriate technical and organizational measures to protect personal information against unauthorized or unlawful processing and against accidental loss, destruction, damage, alteration, and unauthorized disclosure or access.
We will not share, sell, or rent personal information to any third party, except as provided in this policy or as required by law.

Access to Personal Information

Subscribers have the right to request access to their personal information and to request that it be corrected or deleted. They can do so by contacting us at the email or address provided on the website.
We will respond to such requests within a reasonable time frame.

Changes to this Policy

We reserve the right to make changes to this privacy policy at any time. Any changes will be posted on this page and will take effect immediately.

By subscribing to the Eczema Update, you consent to the collection, use, and protection of your personal information as described in this policy. If you have any questions or concerns about our privacy policy, please contact us at the email or address provided on the website.

French

Eczéma Québec Eczema Update Terms and Conditions

English

Eczéma Québec Eczema Update Terms and Conditions

Introduction

The Eczema Update is a monthly newsletter provided by Eczéma Québec. By subscribing to the Eczema Update, you agree to be bound by these terms and conditions.
Eczéma Québec reserves the right to change these terms and conditions at any time, and your continued use of the Eczema Update following any changes indicates your acceptance of the new terms.

Content

The Eczema Update provides subscribers with information about the latest research, treatment options, and tips for managing atopic dermatitis.
The content of the Eczema Update is intended for general informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Eczéma Québec does not guarantee the accuracy, completeness, or usefulness of any information provided in the Eczema Update.

Subscription

To subscribe to the Eczema Update, you must provide a valid email address and complete the sign-up form.
You may unsubscribe from the Eczema Update at any time by clicking the unsubscribe link at the bottom of the newsletter or by contacting Eczéma Québec.

Privacy

Eczéma Québec respects your privacy and is committed to protecting the personal information you provide when subscribing to the Eczema Update. Our privacy policy is available on our website and will be shared with you upon subscribing.

Limitation of Liability

Eczéma Québec shall not be liable for any damages resulting from the use of the Eczema Update or the reliance on the information provided in the newsletter.

By subscribing to the Eczema Update, you acknowledge that you have read, understand, and agree to be bound by these terms and conditions. If you do not agree to these terms and conditions, you should not subscribe to the Eczema Update.

French

Join the Eczema Family [CB[38]

Eczéma Québec welcomes you to be a part of our community of individuals living with eczema, their caregivers, and healthcare professionals. We understand that managing eczema can be difficult, but together we can empower and support one another. As a member of the Eczéma Family, you will have access to a wealth of information, resources, and a supportive community. Additionally, members have the opportunity to share their experience and insights through events and activities organized by the organization. Join us today and be a part of our mission to improve the lives of individuals living with eczema and raise awareness about this condition.

Eczema Family Sign up form

Personal Information: NameEmail addressPhone numberAddressDate of birth Eczema Information: I am A patient living with eczema A caregiver to someone living with eczema A healthcare professional (if patient) How long have you been living with eczema? How did you hear about Eczéma Québec? Consent: I agree to receive communication from Eczéma QuébecI agree to the terms and conditions of Eczéma Québec

Terms and Conditions for Eczéma Québec’s Eczema Family:

Personal Information: By signing up to become a member of Eczéma Québec’s Eczema Family, you will be required to provide certain personal information, including your name, email address, phone number, and address. This information will be used to provide you with access to the organization’s resources and services and to communicate with you about Eczéma Québec’s activities and events.

Data Protection: Your personal information will be used in accordance with all relevant data protection legislation, including the General Data Protection Regulation (GDPR) and the Personal Information Protection and Electronic Documents Act (PIPEDA).

Confidentiality: Eczéma Québec will keep your personal information confidential and will not disclose it to any third party without your express written consent, except as required by law.

Communication: By signing up to become a member of Eczéma Québec’s Eczema Family, you agree to receive communication from the organization about its activities and events. You can unsubscribe from these communications at any time by clicking the “unsubscribe” link in any email or by contacting the organization directly.

Membership: Membership in Eczéma Québec’s Eczema Family is open to individuals living with eczema and their caregivers.

Code of Conduct: Members of Eczéma Québec’s Eczema Family are expected to conduct themselves in a respectful manner at all times, and to refrain from engaging in any conduct that could be considered to be harassing, bullying, or discriminatory.

Termination: The organization reserves the right to terminate the membership of any member of Eczéma Québec’s Eczema Family at any time if they breach any of these terms and conditions or if the organization believes that their continued membership is not in the best interests of the organization.

Changes to terms and conditions: Eczéma Québec reserves the right to change these terms and conditions at any time, and your continued use of the Eczema Family membership will be deemed acceptance of those changes.

Join Eczéma Québec’s Patient Committee

Eczéma Québec is inviting patients living with eczema to join our patient committee as volunteers. As a member of the committee, you will play a vital role in shaping the resources and services we offer to the eczema community.

As a patient committee volunteer, you will have the opportunity to:

Identify topics of interest and provide feedback on the organization’s activities and resources
Review and provide input on content related to eczema management and treatment options
Share your personal experience with eczema and provide valuable insights on living with the condition
Help to raise awareness about eczema and advocate for the rights and needs of individuals with eczema
Network with other individuals living with eczema and healthcare professionals

We are looking for individuals who are:

Living with eczema
Passionate about making a difference in the eczema community
Willing to share their experience and perspectives
Committed to participating in regular committee meetings and activities

If you are interested in joining our patient committee, please fill out the application form on our website or contact us at patientcommittee@eczemaquebec.com for more information. We look forward to hearing from you and working together to make a positive impact in the eczema community!Top of Form

Eczema Québec’s Patient Committee Sign Up Form

Personal Information: Name Email address Phone number Address Date of birth Eczema Information: I am A patient living with eczema A caregiver to someone living with eczema (if patient) How long have you been living with eczema? (if caregiver) What is your relation to living with eczéma? Volunteer Information: Availability and willingness to attend regular meetings and events Relevant skills and experience Reason for wanting to join the patient committee Consent: I agree to have my personal information used for committee purposesI agree to the terms and conditions of Eczéma Québec

Eczéma Québec’s Patient Committee Members Terms and Conditions

Confidentiality: Patient committee members must keep all information shared by other members and by the organization confidential and must not disclose any such information to any third party without the express written consent of the organization and/or the member providing such information.

Non-disclosure Agreement: Patient committee members will be asked to sign a non-disclosure agreement before accessing any confidential information.

Data protection: Patient committee members must comply with all relevant data protection legislation, including the General Data Protection Regulation (GDPR) and the Personal Information Protection and Electronic Documents Act (PIPEDA).

Code of conduct: Patient committee members must conduct themselves in a professional manner at all times and must not engage in any conduct that could be considered to be harassing, bullying, or discriminatory.

Conflict of Interest: If a committee member has a conflict of interest, such as a financial interest in a company or organization related to eczema, they should disclose this to the organization and recuse themselves from any discussion or decision-making related to that company or organization.

Attendance: Patient committee members are expected to attend meetings and events. If a member is unable to attend a meeting or event, they should inform the organization by email at patientcommittee@eczemaquebec.com.[CB[39]

Decision-making: Patient committee members will have the opportunity to provide input and feedback on the organization’s activities and resources, but ultimately the decisions regarding the direction of the organization will be made by the board of directors.

Remuneration: Patient committee members are volunteers and will not be remunerated for their time and effort.

Duration: Patient committee members will be appointed for a specific period of time, usually one year, after which their participation will be evaluated and renewed accordingly.

Termination: The organization reserves the right to terminate the participation of a patient committee member at any time if they breach any of these terms and conditions or if the organization believes that their continued participation is not in the best interests of the organization.

Eczéma Québec’s Patient Committee Privacy Policy

Eczéma Québec is committed to protecting the privacy of our patient committee volunteers. The following privacy policy outlines the types of personal information we collect, how it is used, and how we protect it.

Information Collection and Use
We collect personal information from our patient committee volunteers when they sign up to join the committee. This information includes name, contact information, age, gender, information relevant to the patient’s experience with eczema, availability, relevant experience to the position.
We use this information to identify potential volunteers and to communicate with them about the committee’s activities and events.
We also use this information to provide our volunteers with relevant information about eczema and to include them in our research studies
Data Protection
We take the security of our patient committee volunteers’ personal information very seriously. We use appropriate technical and organizational measures to protect personal information against unauthorized or unlawful processing and against accidental loss, destruction, damage, alteration, and unauthorized disclosure or access.
We will not share, sell, or rent personal information to any third party, except as provided in this policy or as required by law, unless we have obtained the explicit consent of the volunteer.
Access to Personal Information
Patient Committee Volunteers have the right to request access to their personal information and to request that it be corrected or deleted. They can do so by contacting us at patientcommittee@eczemaquebec.com.
We will respond to such requests within a reasonable time frame.
Changes to this Policy
We reserve the right to make changes to this privacy policy at any time. Any changes will be posted on this page and will take effect immediately.

By joining the Eczéma Québec Patient Committee, you consent to the collection, use, and protection of your personal information as described in this policy. If you have any questions or concerns about our privacy policy, please contact us at the email or address provided on the website.

Eczéma Québec’s Patient Committee FAQ

Q: What is the Eczéma Québec Patient Committee?

A: The Eczéma Québec Patient Committee is a group of individuals who are directly affected by eczema and who provide feedback and insights to our organization on the needs and experiences of the eczema community. The Patient Committee plays an important role in shaping our initiatives and programs.

Q: Who can be a part of the Patient Committee?

A: Any individual who is affected by eczema, whether as a patient, caregiver, or family member, is welcome to apply to be a part of the Patient Committee.

Q: What is involved in being a part of the Patient Committee?

A: As a member of the Patient Committee, you will be asked to participate in regular meetings and provide feedback on Eczéma Québec’s initiatives and programs. Additionally, you may be asked to participate in surveys or focus groups to provide insights on the eczema community’s experiences and needs.

Q: How do I apply to be a part of the Patient Committee?

A: To apply to be a part of the Patient Committee, please fill out an application form on our website. The application form will include questions about your experience with eczema, how you can contribute to the committee, and your availability to participate in meetings and events.

Q: How often does the Patient Committee meet?

A: The Patient Committee typically meets once a month, either in person or via video conference. Meetings are usually held in the evening or on weekends to accommodate the schedules of members.

Q: Is there a compensation for being a member of the Patient Committee?

A: Unfortunately, we do not have any financial compensation for being a member of the Patient Committee. However, it is an opportunity to make a difference in the eczema community, connect with others affected by eczema, and shape the future of Eczéma Québec.

Needs

Digital requirements

Project/platform Requirements

Map of care – Backend database requirements [CB[40]

Clinics
- Primary
- ~~Derm~~
- Phototherapy
- Patch test
- ~~Ophtalmology~~
- ~~Immunology/Allergy~~
Tirals

Human Resources/Recruitment requirements

Board of directors

Chair – Lea Hardcastle

Dear Lea,

I hope this message finds you well. I am writing to inquire about your interest in serving as the Chair of the Eczéma Québec board for a term of one year. As you may know, our organization’s mission is to improve the quality of life of people living with eczema and to raise awareness of this disease in Quebec. We believe that your expertise and experience would be an asset to our board and would greatly contribute to the success of our mission.

As the Chair of the board, you would be responsible for leading board meetings, representing the organization to external stakeholders, and working closely with the board and staff to set and achieve strategic goals. This includes, but is not limited to, overseeing the operations and activities of the board, and ensuring that the organization’s bylaws are followed.

The Eczéma Québec board intends to meet quarterly, and for your reference, the meeting calendar for 2023 is as follows:

1st Quarter: Thursday, February 23rd at 4:30 PM – The upcoming board meeting will cover the proposal and election of board members, approval of financials and strategic plan, patient engagement plan, and review of next steps and future meeting plan.

2nd Quarter: Thursday, May 25th at 4:30 PM

3rd Quarter: Thursday, August 24th at 4:30 PM

4th Quarter: Thursday, December 14th at 4:30 PM

We understand that this is a significant commitment, but we believe that your participation would be extremely beneficial to Eczéma Québec. If you are interested in this opportunity, please let us know and we can schedule a time to discuss further details.

Thank you for considering this opportunity. We look forward to hearing from you.

Secretary – Chloe Hiller

Dear Chloe,

I hope you’re doing well! I wanted to reach out and apologize for not staying in touch as much as I should have. I am writing to inquire about your interest in serving as Secretary on the Eczéma Québec board for a term of one year. As you may know, our organization’s mission is to improve the quality of life of people living with eczema and to raise awareness of this disease in Quebec. We believe that your expertise and experience would be an asset to our board and would greatly contribute to the success of our mission.

As Secretary, you would be responsible for managing the board’s meeting minutes, preparing and distributing agendas, and ensuring that our organization’s bylaws are followed. This includes, but is not limited to, coordinating and scheduling board meetings, and maintaining accurate records of board actions and decisions.

The Eczéma Québec board intends to meet quarterly, and for your reference, the meeting calendar for 2023 is as follows:

2nd Quarter: Thursday, May 25th at 4:30 PM

3rd Quarter: Thursday, August 24th at 4:30 PM

4th Quarter: Thursday, December 14th at 4:30 PM

Thank you for considering this opportunity. We look forward to hearing from you.

Treasurer – Douglas Lebo

Hey friend,

Trust you are well. I am writing to inquire about your interest in serving as the Treasurer of the Eczéma Québec board for a term of one year. As you know, our organization’s mission is to improve the quality of life of people living with eczema and to raise awareness of this disease in Quebec. We believe that your expertise and experience would be an asset to our board and would greatly contribute to the success of our mission.

As the Treasurer of the board, you would be responsible for managing the organization’s finances, creating and monitoring the budget, and providing financial reports to the board. You would also work closely with the rest of the board to ensure that the organization’s financial goals align with our mission and strategic plan.

The Eczéma Québec board intends to meet quarterly, and for your reference, the meeting calendar for 2023 is as follows:

2nd Quarter: Thursday, May 25th at 4:30 PM

3rd Quarter: Thursday, August 24th at 4:30 PM

4th Quarter: Thursday, December 14th at 4:30 PM

Thank you for considering this opportunity. We look forward to hearing from you.

Legal Director

Eczéma Québec is seeking a qualified legal professional to join our board of directors as legal director. The legal director will provide guidance and advice on legal matters related to the organization’s operations and activities.

Responsibilities:

Advise the board of directors and management team on legal matters affecting the organization
Review and advise on legal documents, including contracts and agreements
Ensure the organization’s compliance with relevant laws and regulations
Represent the organization in legal proceedings, as needed
Provide guidance on governance and best practices
Attend and participate in board of directors meetings and committees

Requirements:

Juris Doctor (JD) degree or equivalent
Admitted to the Bar and in good standing
Minimum of 5 years of experience in a legal capacity, preferably in a non-profit or healthcare organization
Strong understanding of laws and regulations related to non-profit organizations
Excellent communication and interpersonal skills
Strong commitment to the mission and values of Eczéma Québec

This is a voluntary position with a two-year term. Eczéma Québec is an equal opportunity employer and encourages candidates from diverse backgrounds to apply. If you are passionate about making a difference in the lives of those living with eczema and are excited about the opportunity to serve on the board of directors, we encourage you to apply.

Please submit your resume and a cover letter to the provided email address.

Board Administrator

Eczéma Québec is seeking a highly organized and detail-oriented individual to join our board of directors as board administrator. The board administrator will provide administrative support to the board of directors and assist with the coordination and organization of board meetings and activities.

Responsibilities:

Provide administrative support to the board of directors, including scheduling meetings, managing correspondence, and maintaining files
Assist with the coordination and organization of board meetings and activities, including scheduling, logistics, and communications
Prepare and distribute meeting agendas, minutes, and other materials
Maintain and update the organization’s database and website
Perform other administrative duties as required

Requirements:

Strong organizational and time management skills
Excellent attention to detail
Strong written and verbal communication skills
Proficiency in Microsoft Office and database management
Experience with website management and social media is an asset
Experience in a non-profit organization is an asset
French and English fluency is required

Please submit your resume and a cover letter to the provided email address.

Contractors

Administrative assistant

Eczéma Québec is seeking a highly organized and detail-oriented administrative assistant contractor to support our team on a project basis. The administrative assistant contractor will provide administrative support to the organization and assist with the coordination and organization of events and activities.

Responsibilities:

Provide administrative support to the organization, including scheduling meetings, managing correspondence, and maintaining files
Assist with the coordination and organization of events and activities, including scheduling, logistics, and communications
Assist with fundraising and grant applications
Maintain and update the organization’s database and website
Provide support for the patient committee
Perform other administrative duties as required

Requirements:

Strong organizational and time management skills
Excellent attention to detail
Strong written and verbal communication skills
Proficiency in Microsoft Office and database management
Experience with website management and social media is an asset
Experience in the field of health is an asset
French and English fluency is required

This is a contractor position with a defined project and duration. Eczéma Québec is an equal opportunity employer and encourages candidates from diverse backgrounds to apply. If you are passionate about making a difference in the lives of those living with eczema and are excited about the opportunity to work with a dedicated team, we encourage you to apply.

Please submit your resume and a cover letter to the provided email address. Please also include your availability and your hourly rate.

Project Manager posting

Eczéma Québec is seeking an experienced and highly motivated project manager contractor to lead and coordinate our upcoming projects. The project manager will work closely with our team to ensure the successful planning, execution, and delivery of our projects.

Responsibilities:

Develop and implement project plans, timelines, and budgets
Coordinate project activities, including meetings, communications, and deliverables
Monitor project progress and make adjustments as needed
Identify and manage project risks and issues
Communicate project status to stakeholders and team members
Ensure project deliverables meet quality standards
Manage project documentation and record-keeping

Requirements:

Proven experience as a project manager, preferably in a healthcare or non-profit organization
Excellent project management skills and knowledge of project management methodologies
Strong leadership, communication, and collaboration skills
Ability to manage multiple projects simultaneously
Experience with project management software and tools
French and English fluency is required

Please submit your resume and a cover letter to the provided email address. Please also include your availability and your hourly rate.

Communication manager – LinkedIn, Twitter

Eczéma Québec is seeking a highly motivated and skilled communication assistant contractor to support our communication efforts. The communication assistant will work closely with the team to develop and execute effective communication strategies to reach and engage our target audience.

Responsibilities:

Develop and implement communication plans and strategies
Write and edit content for various communication channels, including website, LinkedIn, Twitter, email and newsletters
Coordinate and execute events, such as webinars, workshops, and health fairs
Monitor and analyze communication metrics to measure the effectiveness of communication efforts on LinkedIn and Twitter
Collaborate with other departments to ensure consistency in messaging and branding across all platforms
Support the organization’s fundraising efforts by writing grants and proposals

Requirements:

Proven experience in a communication role, preferably in a non-profit or healthcare organization
Strong writing and editing skills
Experience with website management and social media platforms (LinkedIn, Twitter)
Strong project management and organizational skills
Experience with email marketing and newsletter production
French and English fluency is required

Please submit your resume and a cover letter, including your availability and hourly rate, to the provided email address.

Communication manager – TikTok

Eczéma Québec is seeking a highly experienced and creative communication manager contractor to set up and manage a TikTok account for our organization. The communication manager will be responsible for creating engaging and informative content to reach and engage our target audience on the TikTok platform.

Responsibilities:

Develop and implement a content strategy for TikTok
Create and edit engaging and informative videos for TikTok
Manage and grow the organization’s TikTok account, including posting content, responding to comments, and analyzing metrics
Collaborate with other departments to ensure consistency in messaging and branding across all platforms
Provide regular reports on the performance and engagement of the TikTok account

Requirements:

Proven experience in managing social media accounts, particularly TikTok
Strong video editing skills
Experience with website management and other social media platforms
Strong project management and organizational skills
Strong understanding of the TikTok algorithm and best practices for growing an account
French and English fluency is required

Please submit your resume and a cover letter, including your availability and hourly rate, to the provided email address.

[CSJM1]EQ is public patient.

CEPPP framework is for physician-defined patient in traditional health encounters (more related to COE). We would have to clarify what CEPPP specifically would provide support to non-profits

[CSJM2]Where is the mandate for physicians,bringing expert engagement from the province … see all prior documents

[CSJM3]Valerie please incorporate all the content previously worked on and found in power point slides used for prior meeting with board.

[CSJM4]This is nice

[CB[5]Compassion and empathy for those living with eczema
Respect for the diversity of experiences and needs of individuals with eczema
Support for education and awareness about eczema and its management
Accessibility and inclusivity for all members of the eczema community
Evidence-based information and resources for eczema management and treatment
Collaboration with healthcare professionals and researchers to improve eczema care
Advocacy for the rights and needs of individuals with eczema
Empowerment of individuals with eczema to take control of their condition and their lives.

[CB[6]Community: We are an inclusive community that brings together individuals with eczema, their caregivers, and healthcare professionals to support and empower one another.
Expertise: Our team is made up of experts in eczema, including healthcare professionals and researchers, who provide accurate and up-to-date information and resources on eczema management and treatment.
Advocacy: We are committed to advocating for the rights and needs of individuals with eczema, and work to raise awareness and improve access to treatment and support.
Innovation: We strive to be at the forefront of eczema research and treatments, and are always looking for new and innovative ways to improve the lives of individuals with eczema.
Empowerment: We believe in empowering individuals with eczema to take control of their condition and their lives, and provide the education and resources they need to do so.
Collaboration: We work closely with healthcare professionals, researchers, and other organizations to improve eczema care and advocate for the rights and needs of individuals with eczema.
Inclusivity: We strive to be accessible and inclusive to all members of the eczema community, regardless of their background or circumstances.
Transparency: We are transparent in our operations and communication with our members and stakeholders, and encourage feedback and participation in our decision-making process.

[CSJM7]URGENT NEED FOR EXPERT COMMITTEE FOR E QUEBEC

[CSJM8]The tone could be more active. We “are” , we “aim”

…to facilitate bilateral exchange with all stakeholders (… please build from SSA resources, which are most relevant to framing stakeholder involvement

[CSJM9]How?.. Need action plan

[CSJM10]We are building ….

*also note that you’ll have to address industry partnerships here

[CSJM11]..working with all stakeholders to make real change

[CSJM12]Put items with no activity into a section “under construction”

[CB[13]To elect LH

[CB[14]Need LH headshot for the website

[CB[15]Need LH bio for the website

[CSJM16]erm.. has anyone asked LH if she would be willing?

[CSJM17]To discuss…

[CSJM18]I think this needs to be someone who is really invested and who will be able to fully understand the disease ..what we are about.

[CB[19]To elect CH

[CB[20]Need CH headshot for the website

[CB[21]Need CH bio for the website

[CSJM22]Asked?

[CSJM23]Capacity for engagement may be an issue … maybe better in a ‘development’ role.

work will be needed to recruit strong contributors in oder to make this work. In order to ensure commitment, estimated time and tasks could be outlined. What happened to the contact for this financial role provided by rose?

[CSJM24]Suggest ‘interim’ for now

[CB[25]To elect DML

[CB[26]Need DML bio for the website

[CB[27]To elect CJ

[CB[28]Need CJ bio for the website

[CSJM29]We had previously a structure of committees. No one will want to committ to volunteer to this responsibility and liability alone

[CSJM30]Here, I think a strategy is needed to structure as much of this into service contracts as possible. To rely on volunteers alone for all medical content, all validity, all verification and routinely updated is just not possible. The bulk of what is needed to support evidence for Eczema Quebec is based on ties to COE. The best option would be to work to clone COE groups at the four universities and/or large dedicated clinics, then to seek partnerships with their members to provide data, information, etc.

[CB[31]Need to find someone who knows the process of:

– Filing org taxes to gov

– Registering EQ for a GST #

[CSJM32]Charlie have you tried to ask Lea?

[CSJM33]To correct

[CSJM34]Where does this verbiage come from.. what kind of supplemental information would be included here?

[CSJM35]Who is management?

[CB[36]This will serve to compare satisfaction per-post website redesign

Eczéma Québec should include the following items in its patient satisfaction survey to gather feedback on the organization’s programs and services:

Overall satisfaction: Ask patients to rate their overall satisfaction with the organization’s programs and services on a scale
Programs & Services: Ask patients to rate their satisfaction with specific programs and services offered by the organization. (Website, Newsletter and Socials)
Relevance: Ask patients if they found the programs and services offered by the organization relevant to their needs.
Accessibility: Ask patients if they found the programs and services offered by the organization easily accessible.
Improvement: Ask patients for suggestions on how the organization can improve its programs and services.
Demographics: Ask patients for demographic information (e.g. age, gender, eczema severity, etc.) to better understand the needs of different segments of the patient population.
Open-ended questions: Include open-ended questions that allow patients to provide additional feedback and comments about their experience with the organization.

It is also important to make sure the survey is accessible and easy to understand, and that it respects the privacy of the patients.

[CB[37]Get inspiration from NEA https://nationaleczema.org/contact/

[CB[38]Project for 2025

[CB[39]Currently eczemaquebec@gmail.com

[CB[40]Get inspiration from NEA https://nationaleczema.org/research/clinical-trials/

Website post

English Survey

French survey

English

French

Non-Responsibility disclaimer

English

French

Newsletter sign up form

English

French

English

French

English

French

English

French

English

French

English

French

Chair – Lea Hardcastle

Secretary – Chloe Hiller

Treasurer – Douglas Lebo

Legal Director

Board Administrator

Administrative assistant

Project Manager posting

Communication manager – LinkedIn, Twitter

Communication manager – TikTok

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