Mission

Under the leadership of Dr. Carolyn Jack, MDCM, PhD, FRCPC (Dermatologist, Principal Investigator) and in close collaboration with patient partners, Eczéma Québec was created as a subsidiary of the McGill University Hospital Network Center of Excellence for Atopic Dermatitis. Our organization, a network of patients and health care practitioners, was created to build resources based on international best-practice guidelines. Eczéma Québec aims to partner with patients to improve education and experience of care, to increase knowledge of atopic dermatitis by researching disease factors, as well as to promote awareness and the health of our population.

As part of that effort, Eczéma Québec is building strategies to meaningfully involve patient partners. The Eczéma Québec patient committee was formed in 2018 to explore, create, and participate in content for those who are living with this disease. To date, the patient committee has been involved the following:

● Systematically identifying and evaluating open-source online educational content
● Synthesizing existing information for delivery via a digital tool, the EczemaQ app
● Creating new, relevant and patient-centered content for patients and public

What is the McGill University Hospital Network Center of Excellence for Atopic Dermatitis?

The McGill University Hospital Network Center of Excellence for Atopic Dermatitis (McGill COE AD) is a network of clinicians, researchers, healthcare professionals, and patients. The goal of McGill COE AD is to drive excellence in adult patient atopic dermatitis management by developing state-of-the-art, evidence-based, and patient-centered care focused on the fundamentals of adult eczema in terms of pathophysiology, diagnosis, and multifaceted management. In that aim, we have established a specialty clinic for adult patients with atopic dermatitis in order to improve the management of this hard-to-treat condition. We are also building a center of reference and clinical excellence engaged in understanding the disease, with research programs and evidence-based approaches centered around the person living with the disease.

Planning Team

Founder and Chair: Dr. Carolyn Jack, MD, PhD
Project Director: Maryam Ehteshami, PhD
Patient Partner: Charlie Bouchard

Steering Committee

Dr. Carolyn Jack, MD, PhD
Dr. Denis Sasseville, MD
Dr. Robin Billick, MD
Dr. Howard Yanofsky, MD
Dr. Osama Roshdy, MD

Multi-disciplinary referral network

McGill University Health Centre (MUHC)
MUHC Glen Site
University of Montreal
CHU Sainte-Justine
Jewish General Hospital
Montreal Children’s Hospital
St-Mary’s Hospital

Allergy/Immunology: Dr. Christos Tsoukas, CM, MD, FRCP(C), FACP, FCAHS
Respirology: Dr. Ronald Onerheim, MD, FRCP(C)
Pediatric Dermatology: Dr. Danielle Marcoux, MD, FRCPC and Dr. Fatemeh Jafarian, MD
Pediatrics and Pediatric Asthma: Dr. Olivier Drouin, MD, M.Sc., MPH, FRCPC

Regional Advisory Board (2019)

Dermatologists

Dr. Danielle Marcoux, MD, FRCPC, University of Montreal
Dr. Fatemeh Jafarian, MD, McGill University
Dr. Mark Kirchhof, MD, PhD, FRCPC, University of Ottawa
Dr. Denis Sasseville, MD, McGill University
Dr. Martin Gilbert, MD, Université Laval
Dr. Yves Poulin, MD, Université Laval  

Nurse specialist

Isabelle Lavoie, M.Ed., B.Ed., University of Montreal

Patient Advisory Committee

Secretary: Charlie Bouchard

Supporting partners

Global sponsor
silver level sponsors
bronze level sponsors
friends of Eczéma Québec
Partner Organizations