Mission
Eczéma Québec is a registered non-profit dedicated to the adult atopic dermatitis community. Commonly known as eczema, atopic dermatitis is the most common and the most burdensome skin disorder in Canada and worldwide, and our aim is to partner with patients to improve education and experience of care, and to promote awareness and the health of our patient cohort’s population.
As part of that effort, we are building strategies to meaningfully involve patient partners. Eczéma Québec was formed in 2018 to explore, create, and participate in content for those who are living with this disease. To date, we have been involved in the following:
- Systematically identifying and evaluating open-source online educational content
- Synthesizing existing information for delivery via a digital tool, the EczemaQ app
- Creating new, relevant and patient-centered content for patients and public
Planning Team
Project Director: Maryam Ehteshami, PhD
Patient Partner: Charlie Bouchard
FOUNDATIONAL Regional Advisory Board (2019)
Dermatologists
Dr. Danielle Marcoux, MD, FRCPC, University of Montreal
Dr. Fatemeh Jafarian, MD, McGill University
Dr. Mark Kirchhof, MD, PhD, FRCPC, University of Ottawa
Dr. Denis Sasseville, MD, McGill University
Dr. Martin Gilbert, MD, Université Laval
Dr. Yves Poulin, MD, Université Laval
Nurse specialist
Isabelle Lavoie, M.Ed., B.Ed., University of Montreal
Patient Advisory Committee
Secretary: Charlie Bouchard