Pictured above, the Eczéma Québec team in 2019. Back row, left to right: Charlie Bouchard, Dr. Carolyn Jack, Gaurav Isola, Gaurav Isola, Andrey Gimenez Rivera, Megan Traversy-Drolet, Kathy Yanos. Front row, left to right: Isabel Brinck, Maryam Ehteshami, Nickoo Merati, Stephanie Ghazal.
With direction from Dr. Carolyn Jack, MDCM, PhD, FRCPC (Dermatologist, Principal Investigator) and in close collaboration with patient partners, Eczéma Québec was created as a branch of the McGill University Hospital Network Center of Excellence for Atopic Dermatitis. Our organization, a network of patients and healthcare practitioners, was created to build resources based on international best-practice guidelines. Eczéma Québec aims to partner with patients to improve education and experience of care, to increase knowledge of atopic dermatitis by researching disease factors, as well as to promote awareness and the health of our population.
As part of that effort, we are building strategies to meaningfully involve patient partners. The Eczéma Québec patient committee was formed in 2018 to explore, create, and participate in content for those who are living with this disease. To date, the patient committee has been involved the following:
- Systematically identifying and evaluating open-source online educational content
- Synthesizing existing information for delivery via a digital tool, the EczemaQ app
- Creating new, relevant and patient-centered content for patients and public
What is the McGill University Hospital Network Center of Excellence for Atopic Dermatitis?
A network of clinicians, researchers, healthcare professionals, and patients.
The goal of the COE AD is to drive excellence in atopic dermatitis management by developing state-of-the-art, evidence-based, and patient-centered care focused on the fundamentals of adult and adolescent eczema, in terms of pathophysiology, diagnosis, and multifaceted management.
The primary mission of the COE AD was the founding of the first Canadian tertiary care specialty clinic for adult and adolescent patients with atopic dermatitis. The clinic, which operates out of the MUHC and the Jewish General Hospital, is dedicated to building clinical excellence for chronic atopic dermatitis, centered on evidence-based and guideline-driven management.
- Referral center for dermatologists across Quebec
- Training site for medical students, physician learners and dermatology residents
- Onsite consultation with multidisciplinary specialties (internal medicine, infectious disease, allergy and immunology, etc), and allied health care providers within the polyclinic infrastructure
- Advanced laboratory services immediately adjacent to the clinic
Founder and Chair: Dr. Carolyn Jack, MD, PhD
Project Director: Maryam Ehteshami, PhD
Patient Partner: Charlie Bouchard
Dr. Carolyn Jack, MD, PhD
Dr. Denis Sasseville, MD
Dr. Robin Billick, MD
Dr. Howard Yanofsky, MD
Dr. Osama Roshdy, MD
Multi-disciplinary referral network
McGill University Health Centre (MUHC)
MUHC Glen Site
University of Montreal
Jewish General Hospital
Montreal Children’s Hospital
Allergy/Immunology: Dr. Christos Tsoukas, CM, MD, FRCP(C), FACP, FCAHS
Pediatric Dermatology: Dr. Danielle Marcoux, MD, FRCPC and Dr. Fatemeh Jafarian, MD
Pediatrics and Pediatric Asthma: Dr. Olivier Drouin, MD, M.Sc., MPH, FRCPC
Regional Advisory Board (2019)
Dr. Danielle Marcoux, MD, FRCPC, University of Montreal
Dr. Fatemeh Jafarian, MD, McGill University
Dr. Mark Kirchhof, MD, PhD, FRCPC, University of Ottawa
Dr. Denis Sasseville, MD, McGill University
Dr. Martin Gilbert, MD, Université Laval
Dr. Yves Poulin, MD, Université Laval
Isabelle Lavoie, M.Ed., B.Ed., University of Montreal
Patient Advisory Committee
Secretary: Charlie Bouchard